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When to Call | 911 in an Emergency | Don't Hang Up! | General Associations | Disease-Specific Associations | Contacts


Disease-Specific Associations,
Resource Centers
and Self-Help Groups


Alzheimer's Association (800) 272-3900

Attention Deficit Disorder (ADD)

ADD Warehouse, 300 N.W. 70th Ave., Suite 102, Plantation, FL 33317 (800) 233-9273; www.addwarehouse.com; offers a mail-order catalog full of books, videos, games and other ADD-related products.

Attention Deficit Information Network, 475 Hillside Ave., Needham, MA 02194; (617) 455-9895; provides information on research and support groups.

Children & Adults with Attention Deficit Disorders (CHADD), 8181 Professional Place, Suite 201, Landover, MD 20785 phone (800) 233-4050, fax (301) 306-7090; web site: www.chadd.org. With over 20,000 members and over 200 affiliates nationwide, CHADD is the nation's leading non-profit organization serving individuals with AD/HD.The CHADD National Call Center provides everyone with the information and resources needed to improve the lives of people affected by Attention-Deficit/Hyperactivity Disorder (AD/HD). CHADD is a dynamic organization that can make a difference in your life, whether you are seeking help for yourself, a child, other family members or a friend.

National Attention Deficit Disorder Assn. (ADDA), 9930 Johnnycake Ridge Rd., Suite 3A, Mentor, OH 44060; (800) 487-2282, (313) 769-6729; www.add.org; provides general information about the disorder and support groups.

Arthritis

The Road Back Foundation, 4985 North Lake Hill Road, Delaware, OH 43015; (614) 881-5601; offers information on antibiotic therapy for rheumatoid arthritis and other forms of inflammatory arthritis; was founded to continue the work of Thomas McPherson Brown, M.D.

Cancer

General

Bloch National Cancer Hotline, (800) 433-0464; connects cancer patients with cancer survivors who can address patient?s fears and questions. Callers are referred to volunteers matched for age, sex, and cancer type who are willing to share their own experiences. The service is free.

Cancer Care (support group) (800) 813-4673; www.cancercare.org.

National Coalition for Cancer Survivorship, 1010 Wayne Ave., Ste. 505, Silver Spring, MD 20910; (301) 650-8868; www.cansearch.org; for information on support groups, and employment and insurance rights.

Breast Cancer

National Alliance of Breast Cancer Organizations (800) 806-2226. Call for information on services, programs and support groups available from leading US cancer organizations.

Y-ME National Breast Cancer Organization, 212 W. Van Buren, 4th Fl, Chicago, IL 60607 (800) 221-2141; runs a 24-hour hotline for breast cancer patients and their friends and relatives.

Prostate Cancer

Education Center for Prostate Cancer Patients, (516) 997-1777, fax (516) 997-9555, PO Box 948, Westbury, NY 11590; publishes updates on PC Spes trials and protocols and maintains a database of complementary physicians who specialize in integrating natural and traditional therapies.

Mathews Foundation for Prostate Cancer Research, (800) 234-6284; for information on the prevention and treatment of prostate cancer; trained volunteers and staff members will answer questions, send pamphlets and lend videotapes on this disease.

Celiac Disease

Celiac Sprue Association, PO Box 31700, Omaha, NE 86131-0700; (402) 558-0600, fax (402) 558-1347; www.csaceliacs.org. CSA is an organization for those interested in celiac disease [CD] [nontropical sprue], dermatitis herpetiformis [DH], and the gluten-free diet.

Chronic Fatigue Syndrome (CFS)

The CFIDS Association of America, PO Box 220398, Charlotte, NC 28222-0398, (800) 44-CFIDS; www.cfids.org; has a quarterly magazine, educational material, research and advocacy. (Chronic fatigue and immune dysfunction syndrome)


CFS Survival Association, PO Box 1889, Davis, CA 95617, (916) 756-9242; provides patient contacts, referrals to support groups, and access to other resources.

Digestive Diseases

National Digestive Diseases Information Clearinghouse, (301) 654-3810; for fact sheets regarding ulcers, irritable bowel syndrome, constipation, heartburn and other digestive diseases; they also make referrals to national organizations that sponsor support groups.

Dyslexia

The International Dyslexia Association, 8600 LaSalle Road, Chester Building, Suite 382, Baltimore, MD 21286-2044, (410) 296-0232, fax (410) 321-5069, e-mail: info@ods.org; web site: www.interdys.org has 45 branches in the U.S. and abroad; branches provide many local programs and services, including: information and referral, newsletters, conferences and seminars, and support groups. Membership organization.

Fibromyalgia

The Fibromyalgia Network, Box 314750, Tucson, AZ 85751; (800) 853-2929; for help in finding a qualified practitioner.

Hemochromatosis

American Hemochromatosis Society, 777 East Atlantic Avenue, Z-363, Delray Beach, FL 33483-5352. Send a business-size SASE with two first class stamps for free educational brochures. E-mail them at ahs@emi.net; www.americanhs.org.

Lung Diseases

American Association of Cardiovascular and Pulmonary Rehabilitation (608) 831-6989

American Lung Association (800) 586-4872

Multiple Sclerosis (MS)

National Multiple Sclerosis Society, 733 Third Ave., New York, NY 10017-3288; (212) 986-3240 or (800) 344-4867, fax (212) 986-7981, e-mail: Nat@nmss.org; www.nmss.org. Information resource center and library.

Muscular Dystrophy

Charcot-Marie-Tooth Association (610) 499-7486. Has a Website for this form of muscular dystrophy: www.charcot-marie-tooth.org.

Parkinson's Disease

Parkinson's Disease Foundation, (800) 457-6676, 710 W. 168th St., New York, NY 10032. Has free information on symptoms, treatments, work options, and more.

Psoriasis

National Psoriasis Foundation, 6600 SW 92nd Avenue, Suite 300, Portland, OR 97223-7195, 800-723-9166, (503) 244-7404, fax (503) 245- 0626, E-Mail 76135.2746@compuserve.com; Website: www.psoriasis.org

Rosacea

National Rosacea Society, 220 S. Cook St., Suite 201, Barrington, IL 60010. Provides information and publishes Rosacea Review, distributed without charge to people with the condition.

Sleep Disorders

National Sleep Foundation, 729 15 St. NW, 4th Fl., Department NNR, Washington, DC 20005; Website: www.sleepfoundation.org; E-mail: natsleep@erols.com.

American Sleep Disorders Association, 1610 Fourteenth St., NW, Suite 300, Rochester, MN 55901; Website: www.ASDA.org

Stroke

American Speech-Language-Hearing Association, 10801 Rockville Pike, Rockville, MD 20852-3279; (800) 638-8255 or (301) 897-5700. For referrals to speech-language pathologists (SLPs) or information on dysphagia (swallowing disorders) or speech-language therapy.

Stuttering

Stuttering Foundation of America, PO Box 11749, Memphis, TN 38111-0749, (800) 992-9392; send $1.00 for 56 page book No. 11, a guide for parents.

Tinnitus

American Tinnitus Association, Box 5, Portland, OR 97207. 503-248-9985.

Tourette Syndrome

Tourette Syndrome Association, 42-40 Bell Blvd., Bayside, NY 11361; phone 718-224-2999, fax (718) 279-9596, email: tourette@ix.netcom.com; web site: www.tsa-usa.org. For information on Tourette syndrome, send a SASE business sized envelope and 20 cents.

 

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