Disease-Specific
Associations,
Resource Centers
and Self-Help Groups
Alzheimer's Association (800) 272-3900 Attention
Deficit Disorder (ADD)
ADD Warehouse, 300 N.W. 70th Ave., Suite 102,
Plantation, FL 33317 (800) 233-9273; www.addwarehouse.com; offers
a mail-order catalog full of books, videos, games and other ADD-related
products.
Attention Deficit Information Network, 475 Hillside
Ave., Needham, MA 02194; (617) 455-9895; provides information
on research and support groups.
Children & Adults with Attention Deficit Disorders
(CHADD), 8181 Professional Place, Suite 201, Landover, MD 20785
phone (800) 233-4050, fax (301) 306-7090; web site: www.chadd.org.
With over 20,000 members and over 200 affiliates nationwide, CHADD
is the nation's leading non-profit organization serving individuals
with AD/HD.The CHADD National Call Center provides everyone with
the information and resources needed to improve the lives of people
affected by Attention-Deficit/Hyperactivity Disorder (AD/HD).
CHADD is a dynamic organization that can make a difference in
your life, whether you are seeking help for yourself, a child,
other family members or a friend.
National Attention Deficit Disorder Assn. (ADDA),
9930 Johnnycake Ridge Rd., Suite 3A, Mentor, OH 44060; (800) 487-2282,
(313) 769-6729; www.add.org; provides general information about
the disorder and support groups.
Arthritis
The Road Back Foundation, 4985 North Lake Hill
Road, Delaware, OH 43015; (614) 881-5601; offers information on
antibiotic therapy for rheumatoid arthritis and other forms of
inflammatory arthritis; was founded to continue the work of Thomas
McPherson Brown, M.D.
Cancer
General
Bloch National Cancer Hotline, (800) 433-0464;
connects cancer patients with cancer survivors who can address
patient?s fears and questions. Callers are referred to volunteers
matched for age, sex, and cancer type who are willing to share
their own experiences. The service is free.
Cancer Care (support group) (800) 813-4673; www.cancercare.org.
National Coalition for Cancer Survivorship, 1010
Wayne Ave., Ste. 505, Silver Spring, MD 20910; (301) 650-8868;
www.cansearch.org; for information on support groups, and employment
and insurance rights.
Breast Cancer
National Alliance of Breast Cancer Organizations
(800) 806-2226. Call for information on services, programs and
support groups available from leading US cancer organizations.
Y-ME National Breast Cancer Organization, 212
W. Van Buren, 4th Fl, Chicago, IL 60607 (800) 221-2141; runs a
24-hour hotline for breast cancer patients and their friends and
relatives.
Prostate Cancer
Education Center for Prostate Cancer Patients,
(516) 997-1777, fax (516) 997-9555, PO Box 948, Westbury, NY 11590;
publishes updates on PC Spes trials and protocols and maintains
a database of complementary physicians who specialize in integrating
natural and traditional therapies.
Mathews Foundation for Prostate Cancer Research,
(800) 234-6284; for information on the prevention and treatment
of prostate cancer; trained volunteers and staff members will
answer questions, send pamphlets and lend videotapes on this disease.
Celiac Disease
Celiac Sprue Association, PO Box 31700, Omaha,
NE 86131-0700; (402) 558-0600, fax (402) 558-1347; www.csaceliacs.org.
CSA is an organization for those interested in celiac disease
[CD] [nontropical sprue], dermatitis herpetiformis [DH], and the
gluten-free diet.
Chronic Fatigue Syndrome (CFS)
The CFIDS Association of America, PO Box 220398,
Charlotte, NC 28222-0398, (800) 44-CFIDS; www.cfids.org; has a
quarterly magazine, educational material, research and advocacy.
(Chronic fatigue and immune dysfunction syndrome)
CFS Survival Association, PO Box 1889, Davis, CA 95617, (916)
756-9242; provides patient contacts, referrals to support groups,
and access to other resources.
Digestive Diseases
National Digestive Diseases Information Clearinghouse,
(301) 654-3810; for fact sheets regarding ulcers, irritable bowel
syndrome, constipation, heartburn and other digestive diseases;
they also make referrals to national organizations that sponsor
support groups.
Dyslexia
The International Dyslexia Association, 8600 LaSalle
Road, Chester Building, Suite 382, Baltimore, MD 21286-2044, (410)
296-0232, fax (410) 321-5069, e-mail: info@ods.org; web site:
www.interdys.org has 45 branches in the U.S. and abroad; branches
provide many local programs and services, including: information
and referral, newsletters, conferences and seminars, and support
groups. Membership organization.
Fibromyalgia
The Fibromyalgia Network, Box 314750, Tucson,
AZ 85751; (800) 853-2929; for help in finding a qualified practitioner.
Hemochromatosis
American Hemochromatosis Society, 777 East Atlantic
Avenue, Z-363, Delray Beach, FL 33483-5352. Send a business-size
SASE with two first class stamps for free educational brochures.
E-mail them at ahs@emi.net; www.americanhs.org.
Lung Diseases
American Association of Cardiovascular and Pulmonary
Rehabilitation (608) 831-6989
American Lung Association (800) 586-4872
Multiple Sclerosis (MS)
National Multiple Sclerosis Society, 733 Third
Ave., New York, NY 10017-3288; (212) 986-3240 or (800) 344-4867,
fax (212) 986-7981, e-mail: Nat@nmss.org; www.nmss.org. Information
resource center and library.
Muscular Dystrophy
Charcot-Marie-Tooth Association (610) 499-7486.
Has a Website for this form of muscular dystrophy: www.charcot-marie-tooth.org.
Parkinson's Disease
Parkinson's Disease Foundation, (800) 457-6676,
710 W. 168th St., New York, NY 10032. Has free information on
symptoms, treatments, work options, and more.
Psoriasis
National Psoriasis Foundation, 6600 SW 92nd Avenue,
Suite 300, Portland, OR 97223-7195, 800-723-9166, (503) 244-7404,
fax (503) 245- 0626, E-Mail 76135.2746@compuserve.com; Website:
www.psoriasis.org
Rosacea
National Rosacea Society, 220 S. Cook St., Suite
201, Barrington, IL 60010. Provides information and publishes
Rosacea Review, distributed without charge to people with the
condition.
Sleep Disorders
National Sleep Foundation, 729 15 St. NW, 4th
Fl., Department NNR, Washington, DC 20005; Website: www.sleepfoundation.org;
E-mail: natsleep@erols.com.
American Sleep Disorders Association, 1610 Fourteenth
St., NW, Suite 300, Rochester, MN 55901; Website: www.ASDA.org
Stroke
American Speech-Language-Hearing Association,
10801 Rockville Pike, Rockville, MD 20852-3279; (800) 638-8255
or (301) 897-5700. For referrals to speech-language pathologists
(SLPs) or information on dysphagia (swallowing disorders) or speech-language
therapy.
Stuttering
Stuttering Foundation of America, PO Box 11749,
Memphis, TN 38111-0749, (800) 992-9392; send $1.00 for 56 page
book No. 11, a guide for parents.
Tinnitus
American Tinnitus Association, Box 5, Portland,
OR 97207. 503-248-9985.
Tourette Syndrome
Tourette Syndrome Association, 42-40 Bell Blvd.,
Bayside, NY 11361; phone 718-224-2999, fax (718) 279-9596, email:
tourette@ix.netcom.com; web site: www.tsa-usa.org. For information
on Tourette syndrome, send a SASE business sized envelope and
20 cents.
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